Make a Move 2025

Join us at Make a Move to raise awareness for scleroderma and stand with those affected by it. Your participation helps fund research, patient care, advocacy, and education across Canada.

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Scleroderma is a hard word to say and an even harder disease to fight.

Patient Resources

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Patient Impact Survey Results

Our 2024-2025 Patient Impact Survey Results are now available.

Read the Survey results

#MySclerodermaStory

Everyone has a scleroderma story.

Whether you live with scleroderma yourself, care for a loved one with scleroderma, or just feel passionate about advocating for the sclero-community - your story matters and makes a meaningful impact on the scleroderma community. We invite you to hear from our Board of Directors President, Marc DiRosa, and his #SclerodermaStory

Click here to view more scleroderma stories

and how you can share yours.